The timing wasn’t great. It was just a November 2018 and just a couple of days after my husband was diagnoses with cancer – the Non-Hodgkins Lymphoma type. But is there ever a good time to get news like that?
The doctor said, “You have multiple sclerosis.” It didn’t come as a surprise. We had suspected it for months. In fact, my neurologist referred me over the the local multiple sclerosis specialty clinic after seeing my symptoms. But still, there is something different about hearing those words come out of a doctors mouth.
My doctor explained that MS has no known cure and that treatments plans are designed to treat the symptoms and to help slow the progression. He gave me a listing of potential disease modifying meds to take and come back to let him know which option I wanted to go with. But first they had to do some blood tests to test liver function, test for infection, and test for the JC Virus. I then returned the following week to get those test results and develop a plan.
The bad news was that I was positive for the JC Virus, which meant I was at a greater risk of developing PML. Progressive multifocal leukoencephalopathy (PML) is a rare and often fatal viral disease characterized by progressive damage or inflammation of the white matter of the brain. The average life expectancy for someone developing PML is just six months. What it meant for me is that would have to start out with meds that were the least likely to lead to PML.
I decided to go ahead and treat with the traditional medications, while also doing what I can to hit it with alternate remedies and treatments as well.
This blog will contain my MS journey. I hope to share information I have found on it, as well as some of the other health conditions our family is going though. Hopefully, it will help others who are going through the same thing.